Facebook Live – Epilepsy & LD chat for Parent Carers
We love our Facebook Live chats at Bringing Us Together. They are such a good way of getting information out to families and also getting feedback quickly.
Tomorrow evening at 9pm, we will be hosting a Facebook Live Chat for parent carers discussing Epilepsy and Learning Disability.
NHS England is looking to provide epilepsy pathway guidance to improve outcomes for those with a learning disability and would therefore appreciate your contribution.
We would like to hear parent carer experiences with the care and management of epilepsy of a family member who also has a learning disability.
What questions will we be asking?
- Tell us about your experience with the diagnosis.
- Do you feel confident with treatment plans?
- How is your loved one and yourself involved in this process?
- What is your experience of specialist epilepsy services?
- How do you see the interactions of primary, community and acute care services and management?
You can join us live in our Facebook event – FB Live Parent Carer chat – Epilepsy & Learning Disability.
If you have never been involved in a FB Live before, they are super simple.
Go to the events page and about 8.55pm I will start the Live chat to give people chance to join. This will show as a new post in the event.
Click on the new post and the video live stream will show up.
You can add comments just by typing, like you would add any comment to a post on Facebook.
One question I am asked quite frequently is “can people see me if I am involved?”. No, they can’t. So feel free to attend in PJs, with no make up and a mug of tea in hand. The only person you will be able to see is me. I promise not to be in PJs (unusually for 9pm).
Oh and a quick heads up to those joining us, I am also mum of three and this is bedtime at our home. If you suddenly hear me shout “get to bed” or “I won’t tell you again”, it’s not aimed at you. Honest.
If you can’t join us but would like to share your views and experience, then you can watch it and comment after the event. Use the link above and watch it at your leisure.
I look forward to chatting to you on Thursday evening