Bringing Us Together – Newsletter 01

So, we did it.  We launched on Thursday and we are loving the response to the site.  We have already had 89 people sign up as members to the site and several people have signed up to receive our news via our blog.

I really like the site, loving the idea of buildings and houses… cannot wait for it to become a hub of activity….. parent

It’s amazing…very exciting!……  practitioner

BUT QuestionCan you help?

One parent has asked “my son aged 9 has recently been diagnosed with WPW syndrome, he had to have a heart monitor box (ECG box) fitted for 24 hours he managed well for 22 hours and then got very distressed by it, he now has to have the box put back on a whole week and is very anxious about it already. We have promised him a hot wheels car for every 24 hours he keeps it on with a bigger reward at the end of the 7 days but this has done nothing to calm him any ideas or suggestions to help him and us through…”

Another parent has asked “Just wondering if anyone has any experience of anyone they care for has had pelvic and hip osteotomy an De-rotation” and is looking for other families who have been through similar.

We have also been chatting in the “Bank” about the issues some families can face when setting up accounts for their child who has no passport, driving license and no utility bills.  Have you experienced similar?

Can you share any advice, ideas or support?  Then either sign up as a member and respond directly (in the Health District) or leave a comment on this post and we can pass these on.

This is new to me as I don’t even do face book but I think it is a FAB idea. I am looking forward to getting to chat with people and gather and share lots of useful tips and offer support where I can. THANKS for this opportunity!…………………. parent

top tipsTop Tips

We are trying to put together some top tips for parents and practitioners.  This month we are asking for your top tip for people new to the system.  So, what would be your top tip for a new parent to the system and also, your top tip for a new practitioner to the world of SEN/Disability?

We really want responses from parents and practitioners.  We all have so much to learn from each other.

You can sign up as a member and share your tips on line or leave a comment on this post.

 

Brilliant Site. Wish this had been up and running years ago

Bringing Us Together

Involving: We involve by having our members sharing their invaluable experience in our community.

Informing: We inform by providing useful Resources.

Inspiring: We inspire by providing news, tips and sharing stories.

Influencing: We influence by keeping our members up to date with opportunities to have their say.

Join us, you can help and learn from others and it is totally free.

 

 

Debs Aspland

Mum to three great kids, each with a different SEN. Transplanted from the NW to the SE. Co-founder and Director of Bringing Us Together

You may also like...

3 Responses

  1. Hearts And Minds Challenge says:

    Great idea, wishing you all the very best with this site, hope we can help some of the families on here too!

  2. Kathleen A says:

    Well done Girls!
    Good luck with it all.xx

  3. Angela Rhodes says:

    Brilliant – well done.

Leave a Reply

Your email address will not be published.