Epilepsy & Learning Disability Workshop
Prevalence rates of epilepsy remain high in those with a learning disability compared to those without and epilepsy is a major cause of death among this population.
NHS England is looking to provide epilepsy pathway guidance to improve outcomes for those with a learning disability and would therefore appreciate your contribution.
Share your experience and views:
We would like to hear parent carer experiences with the care and management of epilepsy of a family member who also has a learning disability.
We will be holding a workshop from 10:00-14:00 on 19/10/17 in London (venue TBC). You can follow updates on the event here
For those who cannot make that, we will also be hosting a FB Live event on 26 October from 8.30pm so you can still feed in your views and knowledge. You can follow updates and get involved here
Mum to three great kids, each with a different SEN.
Transplanted from the NW to the SE.
Co-founder and Director of Bringing Us Together
Hi I’m very interested to go to this my son Nathan is almost 5 he has epilepsy and moderate learning disabilities I come from n Ireland do I qualify in placement
Yes x
NHS England held one of these events in Cornwall two weeks ago. It was great to share our experiences as Parents and Carers and I would highly recommend either attending or sharing your story to this event.